Hi Annie,
Thanks for remembering.

Things changed. Mr Ayliffe decided it wasn't Birdshot afterall and the Prof, when he saw my eyes again after the anti vegf injections Mr A did, also knew it wasn't. So it was back to ideopathic pan uveitis and a change in treatment to infliximab and methotrexate, which has shown good results.

Glad the flight rates have come down and I hope the same happened with the hotel room rates. The conference agenda looks really interesting and I still have half a mind to go, but with working and driving sight back, I have a great deal of 'catching up' with life and finances to do. Is anyone else from the UK group going? I wondered about sending some of my blood to join everyone else's, but mine would be of unknown, as yet, disease.

I hope you find the conference helpful and enjoy the company of the other birdshotters. I suspect you might have a great deal of fun together! Who knows, perhaps a gathering of the afflicted in person and in number might reveal something in itself, previously unthought of. (Perhaps I watch too much 'House'). It's quite a remarkable thing though to bring together experts in a rare disease and a big bunch of 'rare' patients from several countries.

I hope your own treatment has continued to be effective
and your eyes and sight remain in good shape.

Best wishes,
Maxine.