*think* I'm over uveitis
But... still have more surgeries down the road (old floaters left-eye) cataract in my good (or better of the two) eyes and a layer over the retina in my right eye that needs to be removed as it was damaged from all the laser surgery that eye had to coterize (sp?) the abnormal hemorrhaging blood vessels that started all this fun in late 1990. I haven't kept read up on uveitis the past few years & used to be better at knowing things. Like did they ever link abnormal blood vessels to this?
Do any of you have super aversions to being out at night with the way street lights & car lights are much brighter than they used to be? I don't drive & was told should be OK to attempt to get a license but seeing as I get motion sickness (have since I was a kid) I'm leary, very... though used to drive a small tractor but knew my limits & if I had a bout, stopped it & laid down... had that happen on a bicycle too.
I have to wear tinted glasses in office buildings because I still have a problem with fluorescent lights. I prefer CRTs to LCD monitors but if I'm able to work somewhere where they've not disabled my ability to mess with settings I should be OK. Finally gave in to getting bifocals... still prefer the old clip on magnifiers I had but I think those probably looked goofy... but such is life.
(and yeah, this account was deleted/in limbo for a while but have been here before as unykornz & no don't have a website anymore)
Edited by: Unykornz at: 7/4/08 3:31 pm
And once w/health insurance again am supposed to keep up appts with an ophthalmologist to keep tabs on me. But all inflammation is gone thank God and guess I really do have an astigmatism which I'm still not quite clear on what exactly that is.
Re: *think* I'm over uveitis
Congrats on no inflammation, thats a big hurdle to jump! I am interested to know more about your right eye and the damage from laser surgeries. I am in the same boat. I had countless laser surgeries back in the day, and now I am 20/120 in my right eye because there is a big dark spot in my way of sight. Do you have any dark spots because of it? What do they plan to do exactly to fix the eye? I would do anything to get mine fixed.
~Molly
Re: *think* I'm over uveitis
No dark spots but... straight lines are warped and curvy. When this started late 1990 I'd have clear vision & then start seeing blood and by the end of the day just a big blob of blood in the eye. Still clear on the very edges of sight but not in the main. My neuro-ophthalmologist said it was damage done to the layer over the retina & I guess it can be peeled away... once that is done it should be normal vision. I know that eye doesn't dilate normally... hasn't for a long time and colors are a little off in it. I don't know if they'd end up having to do vitrectomies again to get rid of the stuff still in both eyes. And if that happens would it be the same or a new lens in the right, that much I don't know yet. The last hemorrhage (very minor) was in my left (good eye) and it was a very small amount (nothing like what the right eye used to do) in either late 2002 or early 2003... in the midst of a 6 month med leave I had... & 3rd cranial nerve inflammation which all appears gone. Both eyes in the same direction again though still can see double... been like that (weak eye muscles) since I was a kid.
Edited by: Unykornz at: 7/4/08 4:26 pm
Re: *think* I'm over uveitis
I printed out the block letter eye chart too... should test my vision again to see where I'm at. Used to have 20/20 vision all along both eyes until this started (with hemorrhages in the eye) but didn't get the name 'uveitis' until 1999. Double vision I've had all my life, weak eye muscles.
Got a question... 'disabled'... do any of you who just deal with the eye stuff consider or have been told you classify as 'disabled'? The reason I'm asking I've been told all this help I 'should have' received in a job hunt but didn't. More concerned with getting employed & not waiting forever for hoops to jump through. The worst I was ever at... the right eye barely made 20/200 (I think that's only being able to see the big E and nothing else)... it's way better than that now. Edited by: Unykornz at: 7/4/08 5:03 pm
Re: *think* I'm over uveitis
I live in Florida, here we have The Division of Blind Services. It sounds intense, but it is not only for blind people, but visually impaired as well. They are very helpful and I was told that they help those who are "members" to find work. It is a state wide agency, provided by tax dollars and it is easy and free to join. I would look into state funded things such as this for wherever you live. Which state do you live in? I work for the Lions Eye Institute Foundation, so I may know of one.
But all inflammation is gone thank God and guess I really do have an astigmatism which I'm still not quite clear on what exactly that is.
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